Nate and I had ended the summer thinking that we would focus our energies on homeschooling this fall and working Michael’s RDI program. I was going to learn how to cope with my increased ADD symptoms. I had very high hopes for lots of change.
Well, it came. Michael suddenly regressed again, pretty severely. Oh, and Nate and I got a little surprise. Turned out I was pregnant.
Soooo, September and October ended up looking very differently than originally intended. My first trimesters are always fairly brutal, and I spent two months on the sofa watching Michael spiral out of control and barely had the strength to deal with it. It was a pretty dark time for me. I felt very helpless to do anything about his situation and a bit like a negligent parent in that I could not provide the structure and routine at home he so obviously needed. Feeling nauseous and exhausted 24/7 wasn’t really helping my outlook either.
In hindsight, I can see God was still taking good care of us and walking with us. As usual, our family stepped up to the plate and gave us invaluable assistance. God also put us on the hearts of some church people as well, and suddenly we had food and help at a time when I could do almost nothing. He encouraged me along the way through various people and gave me the words I needed to hear to persevere. We got some answers to Michael’s health picture, and he began to stabilize. He still has a way to go, but at least we’re moving in the right direction again.
At twelve weeks pregnant, I’m finally starting to feel better. I can do things! Michael’s getting a more focused homeschooling program, and my house isn’t a complete disaster. The kids are eating real food instead of cereal. Nate and I are totally thrilled at the prospect of another baby joining us soon, we’d been considering another addition in the future anyway. Things are still tough, but improving, and God’s hand and encouragement has been everything.
It’s been awhile since the last post, so here are some pictures of my beautiful babies!
Gabriel is doing fantastically. He has a very intense therapy schedule this fall (six sessions a week!), but he’s showing vast improvement. His speech is intelligible most of the time, and the OT work has improved his coordination by leaps and bounds. His special instructor is working on his ability to process information and follow directions, and he is showing progress there as well. I feel like he may not need therapy much longer.
I absolutely cannot resist this face. William is the welcome wagon at our house and always runs to the door with enthusiastic greetings for whoever comes. He is developing by leaps and bounds. His vocabulary is impressive and his relational skills are just plain fun. God was good, and after an acupuncture session, his liver issues seem to have been taken care of, and he is no longer in constant abdominal pain. Of course, he’s making up for that by growing four teeth in right now, but he’s a trooper about it and completely adorable at the same time.
Michael is into all things rocket science right now. He can’t really read (I’m beginning to suspect we might be dealing with some sort of visual processing problems) and numbers still seem kind of abstract to him, but he is always happy to lecture on shuttles with rocket boosters and fuel tanks. We watch lots of documentaries online about NASA (thank God for the internet), and it’s something fun we can do together as rocket science was one of my interests in college. We do many outer space themed homeschooling lessons, it’s a great way to keep his attention.
I was just thinking of the chorus to Tindley’s’ hymn “Beams of Heaven”.
“I do not know how long ’twill be,
nor what the future holds for me,
but this I know: if Jesus leads me,
I shall get home someday.”
We’re gonna get there. Somehow and someway.
I’ll try not to stay away so long this time. Happy Thursday to you all!
P.S. Shameless plug here: Nate started writing a blog recently about what it’s like to be a dad with special needs kids. It’s aimed at fathers, to encourage them to stay the course. Here’s the link! Not A Curse